Bruno's ramblings

A blog where I ramble about... well... stuff.

For over a year, with small periods of inactivity here and there, I had some paid work, writing and reviewing other people's writings, mostly the latter. This was the only thing I found I could do at my own pace, with no fixed schedule, whenever my lack of health allowed it. Although I didn't make a ton of money monthly, it allowed me to pay my medication, basic expenses, and the weed or weed derivative I used to keep the pain low enough so I could keep working for more than an hour a day. And, for a while, I had enough pain relief that I could almost feel a glimpse of normalcy, as long as I reduced my physical effort to a minimum.

At some point, this made me think the good times would keep up, and I was no longer feeling like dead weight to everyone around me. Reality is a bitch, though, and doesn't care about anyone. Eventually, the work began to dry up. Every month, the amount of work decreased to the point I am today, with barely any paid work in the last three months.

We have a saying here: β€œno money, no vices”. I had gotten used to a manageable level of pain (keep in mind that what I consider manageable is still a crazy amount of pain), and I had forgotten how bad it gets. I didn't forget this shit is awful, but I had forgotten exactly how painful it can get.

Let me give you a fresh example: last Monday, at dinner, my fingers were hurting so much I could barely cut my own food.

Now, I'm back to literally burning my back just to get a small relief. I'm not joking or exaggerating. Almost a week later, I still have blisters from putting a hot water bag directly on my back a few times per day. If I don't brute force the pain signals with other stuff, like the burning feeling, I can't get pain relief. This is what I suspect happens with the weed: the increase in serotonin production forces the brain to allocate more resources to it, leaving less for the pain signals.

I'm currently trying to find another work option, but it's not an easy thing to do when you have these constraints.

#ChronicPain #Fibromyalgia #Ramblings #Pain

This assumes you're using Pipewire for your audio demands. Also, YMMV, depending on your hardware and the codec and encoding parameters of your music files.

Read more...

I hadn't even read about the intentions to turn Firefox into an AI browser, and I just saw this post on the Fediverse.

"Penguin screaming and crying" Pudgy Penguins

Does this mean Firefox will become an agentic browser?

Actual question!

If so, just... Please, don't! Take a hint from this article.

Leia mais...

In an interview with β€œThe Verge”, the new Mozilla CEO, Enzor-DeMeo, IMHO hints that axing adblockers is something that, at the very least, was on the table in some form and at some point. From the article:

He says he could begin to block ad blockers in Firefox and estimates that’d bring in another $150 million, but he doesn’t want to do that. It feels off-mission.

It may be just me, but I read this as β€œI don't want to 😜 😜 but I'll kill AdBlockers in Firefox for buckerinos πŸ˜‚β€. This disappoints and saddens me a lot, and I hope I'm wrong.

Leia mais...

In the second half of October, I replaced Ubuntu 24.04 with OpenSUSE Tumbleweed. This marked the end of my Ubuntu experience. Well, for the moment, at least, because you never know how tomorrow's going to be.

This decision was not made lightly. After several months using Ubuntu 24.04, I was happy with the system. I was even using GNOME after using KDE Plasma for most of the last few years, because I liked Ubuntu's default experience on that desktop environment and found it better than the default one.

Leia mais...

Mosteiro do Crato

Five years later, we finally had proper vacations! πŸŽ‰ We chose the northern interior part of Alentejo because we had a voucher that covered most of the hotel cost, and we could use it to spend a few nights in the monastery of Crato, a breathtaking place that looks more like a castle.

Leia mais...

This blog post is one of the most gutwrenching and relatable things – IMHO, at least for me – I've read in the last half-decade. The β€œYou'll be ok. We're here for you.” that soon changes to β€œYou're not ok yet? Get over that, don't be a wuss. Bye!” is all too relatable for me.

Most of the people in my life just stopped reaching out, and I'm left to do it if I want to talk to them. And if they won't do it, I sure as hell won't because I have other stuff to worry about, like having the energy to cook. It may not even be a small task for you, but for someone with chronic pain, IT IS a big endeavour.

#ChronicPain #Fibromyalgia #Health

On the 28th, somewhere after lunch, my father asked me to take a look at his computer because he couldn't find the bird program icon, as he calls Thunderbird. Keep in mind that he's over 60 years old, and he neither speaks English nor is computer-savvy.

I remembered the default installation profile for the Linux distro I set up on his desktop had it, so the program was there; he was just missing the shortcut on KDE's Plasma taskbar. I added the icon to the taskbar, then took the chance to explain to him how he can create and use email templates in Thunderbird for stuff he does regularly, like asking for prescriptions. To be honest, I think the only part he memorized was how to use the one I created for him. πŸ˜…

Read more...

I stumbled upon this post on r/fibromyalgia, titled β€œHow long did it take you to accept it?”. As I'm writing this, I'm still processing both the post and the comments; at the same time, feeling relieved that it's a lot more common to struggle to accept this fucking syndrome.

Knowing I'm not one of the few who struggle with accepting this and all the limitations it imposes is like taking weight off my chest. And to be honest, I don't think I'll ever fully accept this. Why would I? To me, that's like giving up, conceding defeat.

Read more...

One of the symptoms I hate the most in fibromyalgia is how it messes with my internal temperature perception. Whatever the season we're in, if I'm in pain, I'm sweating. If I do something that my body interprets as physical effort, I transform into a human sweat waterfall. Sometimes, things get even worse, and I feel so hot that I have trouble breathing.

Let me use today as an example.

Read more...