4 Jake's Sake

Boston 25 News Does A Zip Trip To Hudson

Sheryl Marrazzo — Sat, 20 Aug 2022 16:51:25 +0000

Jake was interviewed by Elizabeth Hopkins from Boston Fox 25 when they did a Zip Trip to Hudson, MA. Jake talked about his book, and the lack of accessibility in 2022.

The post Boston 25 News Does A Zip Trip To Hudson appeared first on 4 Jake's Sake.

College Bound

Jake Marrazzo — Tue, 31 Aug 2021 19:36:25 +0000

Since my mom shares my entire life on Facebook, I’ve been getting asked lately how I feel about attending Wheaton College. I’m really excited about the opportunity to go but also nervous about moving away from home. It’s a mixture of emotions I call nerve-cited. I’m sure most people feel the same way, but there’s another thing added on that I have to be nervous about, and that is other people taking care of me.

The post College Bound appeared first on 4 Jake's Sake.

Virtual Event with Jeff Kinney and Jake Marrazzo on December 14

4 Jake's Sake — Mon, 16 Nov 2020 13:49:44 +0000

We are so excited to announce a special virtual event, as Jeff Kinney, the author of the Diary of a Wimpy Kid book series and owner of the Unlikely Bookstore, will interview Jake Marrazzo about his new book, One Wants to be a Letter and growing up with Duchenne Muscular Dystrophy on Monday, December 14, 2020, at 7:00 pm.

The post Virtual Event with Jeff Kinney and Jake Marrazzo on December 14 appeared first on 4 Jake's Sake.

One Wants to be a Letter Book Has Sold 500 Copies!

Sheryl Marrazzo — Fri, 23 Oct 2020 02:52:54 +0000

When we released the One Wants to be a Letter Book a month ago, we had modest hopes for the book sales. However, we are happy to report that we have now sold over 500 copies of the book! This news is so amazing and Jake is blown away by the enthusiastic response. About the […]

The post One Wants to be a Letter Book Has Sold 500 Copies! appeared first on 4 Jake's Sake.

Jake on the Dr. Phil Show!

4 Jake's Sake — Mon, 27 Apr 2020 20:33:34 +0000

Today, Jake and Sheryl Marrazzo appeared on the Dr. Phil Show along with Dr. Freda Lewis-Hall from Pfizer! Jake shared with Dr. Phil that he doesn’t let Duchenne Muscular Dystrophy slow him down and wants to share his positive message with younger children dealing with their diagnosis. Read more about Jake from the website Get […]

The post Jake on the Dr. Phil Show! appeared first on 4 Jake's Sake.

Driving with Duchenne Muscular Dystrophy

4 Jake's Sake — Fri, 26 Apr 2019 01:33:23 +0000

Jake turned 16 years-old in January and for most kids his age that means heading down the DMV and getting a driver’s permit. Jake will take a different path to get on the road as it is necessary for him to get a specialized vehicle. These vehicles allow the driver to control the steering, accelerator […]

The post Driving with Duchenne Muscular Dystrophy appeared first on 4 Jake's Sake.

Jake Marrazzo Chosen as WCVB Channel 5 Boston A+ Student

4 Jake's Sake — Tue, 09 Apr 2019 00:57:16 +0000

Jake Marrazzo has become a remarkable 16-year-old sophomore at Hudson High School. Jake has not let Duchenne Muscular Dystrophy keep him from pursuing his dreams of performing on Broadway, driving a car and helping to cure his disease. Recently, he was chosen to be featured as one of WCVB Channel 5 Boston’s A+ Students. Antoinette […]

The post Jake Marrazzo Chosen as WCVB Channel 5 Boston A+ Student appeared first on 4 Jake's Sake.

Parents Swap Stories at the CureDuchenne ‘Futures’ Conference

Sheryl Marrazzo — Sun, 16 Dec 2018 13:20:06 +0000

Sheryl, John and Jake shared their story with other Duchenne parents and kids at the CureDuchenne’s Futures conference, held November 3–4, 2018 in Needham, Massachusetts. Jake, now 15, was diagnosed with Duchenne in January 2011, just before his eighth birthday. “We couldn’t move Jake, so we had chair lifts installed, which insurance didn’t cover,” Sheryl […]

The post Parents Swap Stories at the CureDuchenne ‘Futures’ Conference appeared first on 4 Jake's Sake.

Father & Son with Duchenne complete Buzzards Bay Triathlon

Sheryl Marrazzo — Sun, 16 Sep 2018 22:03:51 +0000

Jake’s Dad, John, competed with two other Dads on the Dudes Against Duchenne Team at the Buzzards Bay Triathlon on September 16, 2018. It is a beautiful course right along the ocean in Westport, MA on Buzzards Bay. The race started with a two mile run with Jake being pushed by John in our Hoyt Chair. […]

The post Father & Son with Duchenne complete Buzzards Bay Triathlon appeared first on 4 Jake's Sake.

Jake Talks to 1st Year Medical Students at UMass Medical

Sheryl Marrazzo — Wed, 12 Sep 2018 19:57:14 +0000

Jake was asked to be a guest speaker talking to first-year medical students at the University of Massachusetts Medical School (UMMS) on September 12, 2018. He spoke to them about what he thinks makes a doctor world-famous. Jake had them laughing which the students told him was the highlight of their day. One of the […]

The post Jake Talks to 1st Year Medical Students at UMass Medical appeared first on 4 Jake's Sake.