Comments for Anna Hamilton | Writer https://annaham.net Thu, 22 Nov 2018 01:40:29 +0000 hourly 1 http://wordpress.com/ Comment on Bad Sleep, part 1 by christineplouvier https://annaham.net/2018/07/18/bad-sleep-part-1/#comment-12748 Wed, 21 Nov 2018 16:42:25 +0000 http://annaham.net/?p=1569#comment-12748 Chronic pain and fatigue are just two of the many heads of a monster begotten of autoimmunity and sleep apnea. This Hydra torments people of all generations, not just Millenials, or Boomers like me (my mother, an octogenarian, has always suffered this way; unfortunately, because of lifelong fear and misunderstanding, she refuses treatment).

I’m glad you had polysomnography done, and are now using CPAP. It’s too bad that poor air quality in your area has interfered with your use of the device. In my experience, nasal congestion problems are also associated with poor mask fit causing pressure on nasal cartilage, inappropriately high air pressure, and an imbalance between room air temperature, tube heating, and humidification. Head position also has a degree of influence, because of body fluid shift causing swelling in nasal passages. It’s a continual juggling act for me to get a few decent snatches of sleep at night between episodes of severe chronic pain.

There are so many of us blogging about these interrelated health problems, we would make a statistically significant sample for a research study. (If ever you’re feeling up to it, I have several blog sites, and the one that deals with some specifics of my health issues is at https://butterflybefree.wordpress.com)

I understand what you’re going through, so I don’t expect a reply to this comment. I just wanted to express my empathy and contribute to the reassurance that you are not alone.

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Comment on My Gallbladder Removal Adventure by Things That Suck About Having Chronic Pain or, Yet Another Ill-Advised Essay That is Too Complicated For Me to Get Published Someplace Else | Too Much Tea https://annaham.net/2018/01/11/my-gallbladder-removal-adventure/#comment-12746 Tue, 20 Nov 2018 21:58:22 +0000 http://annaham.net/?p=1544#comment-12746 […] The only time I can really say that my pain level has ever been “almost nonexistent” was when I was hospitalized for pancreatitis and got Dilaudid for the pain. This is not an experience I’d ever want to repeat, but I will say […]

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Comment on Bad Sleep, part 1 by Jenn https://annaham.net/2018/07/18/bad-sleep-part-1/#comment-12667 Thu, 25 Oct 2018 18:29:16 +0000 http://annaham.net/?p=1569#comment-12667 I came here after reading your article about allergic reactions. Have you ever been evaluated for Mast Cell Activation Sybdrome, Ehlers-Danlos Syndrome, and Dysautonomia? They run in a cluster and sound SO much like what you have. EDS is often misdiagnosed as fibromyalgia.

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Comment on My Gallbladder Removal Adventure by thepeekla https://annaham.net/2018/01/11/my-gallbladder-removal-adventure/#comment-12254 Fri, 20 Apr 2018 00:55:27 +0000 http://annaham.net/?p=1544#comment-12254 When my mom got her gallbladder removed in the 80’s she kept the marble-sized stones (her surgeon was aghast at the request, but complied) in a pill bottle on our mantle as a souvenir and conversation starter for first time dinner guests. Did you get to keep you gallstones? Also glad to see you made it through the surgery okay.

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Comment on 13 Fibromyalgia Moments by vafann https://annaham.net/2016/08/24/13-fibromyalgia-moments/#comment-11311 Sat, 29 Oct 2016 14:44:49 +0000 http://annaham.net/?p=1474#comment-11311 Thank you, I have the same crap end it´s driving me crazy(er). I´m not glad that you have it, but I´m glad that there are others who understand. 🙂

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Comment on 13 Fibromyalgia Moments by Life as Grace https://annaham.net/2016/08/24/13-fibromyalgia-moments/#comment-11293 Sun, 09 Oct 2016 08:20:53 +0000 http://annaham.net/?p=1474#comment-11293 I am 15 and I have fibromyalgia also. I’ve never been able to sum it up without beginning to write a novel. I understand everything you said and I often dread the rest of my life because of fibromyalgia. I love what your super power would be too! I might use that a few times. My response to people when they say “oh you look fine’ is “Well there is people out there with cancer dying and you can’t always see it” it just makes them think about it. I’ve learnt that no one understands except for those with Fibromyalgia.

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Comment on 13 Fibromyalgia Moments by Kulturrausch Devi https://annaham.net/2016/08/24/13-fibromyalgia-moments/#comment-11276 Thu, 25 Aug 2016 16:07:38 +0000 http://annaham.net/?p=1474#comment-11276 I so much can understand you cuz I am living with constant pain since 30 years. Sometimes it is really only by NRS =1/2 and on some days it is like NRS 9 … the fuck about my pain is that it usually grows when I try to relax … so the best way to overcome is to work. But this is kind of suicide as well. I am the person with most less “sick” days at my team at work. I don’t fear the pain. I work it out. I usually apologize for bad mood or awkward moments at work but I never give up. I give you my hands … and I am proud to say you are a powerful woman and even when people are around who cannot understand you … they*ll never understand what chronical pain is about.

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Comment on 13 Fibromyalgia Moments by Carolyn https://annaham.net/2016/08/24/13-fibromyalgia-moments/#comment-11275 Thu, 25 Aug 2016 11:18:57 +0000 http://annaham.net/?p=1474#comment-11275 Ms. Anna, this was the most eloquent description I have ever read. An “overcoat of bricks” will haunt me for years to come. I have one too, and that turn of phrase will be quoted time and again to those who question me. Thank you for your wise candor.

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Comment on 13 Fibromyalgia Moments by Ann Magill https://annaham.net/2016/08/24/13-fibromyalgia-moments/#comment-11274 Wed, 24 Aug 2016 22:07:49 +0000 http://annaham.net/?p=1474#comment-11274 I love your superpower wish. It’s memorable to the offenders, yet not causing any long term damage.

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Comment on x’ed by Shelley Whiting https://annaham.net/2011/04/08/xed/#comment-2933 Fri, 28 Mar 2014 03:58:43 +0000 http://annaham.net/?p=682#comment-2933 The cartoon was really provocative so it caught my attention. Then I saw that it was about fibro. Really unsettling and thoughtful work.

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