Inspiration

The inception of HealDAO was rooted in the realization that healthcare data, one of the most sensitive and vital aspects of our lives, often remains fragmented, insecure, and inaccessible when most needed. The vision was to create a decentralized platform where patients could have full control over their health records, ensuring both security and accessibility.

This project was spearheaded by Dr. Reza Fatahi, a former fellow of the National Institutes of Health with a formal education in basic medical sciences, and Dr. Maryam Poursartip who is an accomplished and licensed physician and clinician practicing in the state of California. The DAO was designed after many discussions about the current state of managing medical records and how to potentially disrupt the status quo to benefit patients and healthcare providers and organizations.

What we learned

Throughout the journey of conceptualizing and building HealDAO, we delved deep into the intricacies of Oasis Sapphire technology and its potential in revolutionizing data management. The MSPS (Medical Standards Proposal System) standard emerged as a groundbreaking approach to efficiently store and verify expansive datasets. We also gained insights into the importance of trustless verification, ensuring data integrity without the need for intermediaries.

How we built it

HealDAO was constructed for the Oasis Sapphire ParaTime, leveraging its smart contract and privacy capabilities. The project underwent multiple iterations, starting with a basic data storage mechanism and evolving into a sophisticated system with the MSPS standard. Collaborative discussions, feedback loops, and rigorous testing were integral to the development process. Tools like Solidity for contract development and Chai for testing were instrumental in bringing the vision to life.

Challenges we ran into

One of the primary challenges was ensuring data efficiency without compromising on the detail and integrity of health records. The introduction of the MSPS standard was a solution, but it required meticulous planning and implementation. Another challenge was the dynamic nature of blockchain technology, with constant updates and changes. Ensuring that HealDAO remained up-to-date and compatible was a continuous endeavor. Lastly, striking a balance between user-friendliness and the technical robustness of the platform was a challenge that required careful consideration and iterative design.

Accomplishments that we're proud of

As a result of the hackathon, we are proud of a formal data minification standard that was specifically crafted for medical/dental data, very flexible and usable for clinical use cases (including insurance), and that contains safeguards such as a governance system (similar to EIP) and mathematical proof verification system to ensure data integrity.

What's next for HealDAO

HealDAO will become an integral part of our future efforts to personalize, democratize, and decentralize healthcare, in a human-centric manner. We will continue to build out other components of the DAO and explore interfacing and integrations with various use cases and applications, including personalized health care, under the supervision of the team (who are experienced in the field of healthcare).

The MSPS (Medical Standards Proposal System) will be formalized with a version 1 of the standard and its governance mechanisms, including discussion board and voting, taking inspiration from how EIPs are vetted and introduced to the community.

The structure of HealDAO will be improved, likely to individual files for each data structure and their operations, alternatively, to consolidate the data to a single data structure. Therefore, ongoing experimentation will be required to enhance the current proof-of-concept design.

Additional aspects for advancing HealDAO include the following:

1) Storage- Use Sapphire's private smart contract state to store health records securely. Each record can be encrypted, ensuring only authorized individuals (like the patient or designated healthcare providers) can access it.

2) Sharing- Implement convenience methods, such as timeouts and schedules, for patients to grant temporary access to a healthcare provider, DAO, service, etc. while ensuring privacy and control. This will facilitate the sharing and controlled update of records.

3) Large Media- Develop an open-source mechanism for transacting large and very large files (e.g., MRI, CT scans, videos, etc.) through an offline mechanism that is optimized for EVM, Sapphire, and HealDAO.

4) Insurance & Scoring- Implementing features to share (i.e., specified) health records, through granting/revoking access, to provide insights (without revealing specifics) to insurance DAOs, health scoring systems, other communities, etc. This can be done using zero-knowledge proofs or other privacy-preserving mechanisms.

5) Community Oversight- DAO governance will be included for updating standards, integrating with new health tech, or making decisions about the platform's future.

6) Monitoring- A dashboard to track and trace changes for associating entries to a source, for example from a ledger of third-party DAOs and services with public addresses, to ensure records are reliable and resilient.

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