Ellie Danlos

mast cells are a vital part of the immune system that release histamine in response to threats, ensuring your body defends itself against pathogens. however,if you have too many mast cells, or they’re too active, your body can start perceiving everything as a threat. this can take a number of forms, most commonly allergies, atopic…

i’ve been going to more pain management appointments lately, and have started to realize that, while many doctors who work in pain, emergency med, ortho, and rheumatology are familiar with the ehlers-danlos syndromes, not many are familiar with the social aspects of the biopsychosocial experience of living with eds, and it is a pretty major…

when you tell someone that you have a connective tissue disorder, they’re often curious about how you figured that out. i feel kind of weird and egotistical laying out the whole story, but it was precisely this kind of personal narrative that helped me to recognize what was happening to my own body, so i’m…

midwestern florida is famous for being both a misogynistic dumpster fire and a transphobic hellhole. our government has recently banned trans-affirming care for minors, as well as tried to legally define gender based on the presence or absence of a uterus. this patently stupid and dangerous legislation is kind of proof positive of the ways…

this post is addressed to doctors: i know you’re overworked and burnt out, especially in the wake of coronavirus. believe me. i worked pulmonology research in 2020. i know the neoliberal hellscape of american medicine asks you to be a million places at once and turn over beds. but that doesn’t give you the right…

a quick trip down memory lane: did you ever read those “scary stories” books? like “scary stories to tell in the dark,” “scary stories to keep you up at night,” “scary stories to haunt ellie for twenty years because the illustration of the girl from the green ribbon gave ellie the ick…” “the green ribbon”…

hello world. call me ellie. ellie danlos. i’m not actually a teenager anymore, but due to my rare genetic condition, “garbage body”, i look much younger than i actually am. instead of reading as the nearly thirty sleep deprived phd student i am, people tend to assume i’m an anxious college student struggling with being…