Latest News for: muscular dystrophy

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Mesquite firefighters hitting streets to raise money for muscular dystrophy research

Celina Record 21 Mar 2026
Starting March 26, firefighters will fan out across major intersections throughout the city on select Thursdays and Fridays from 4 to 6 p.m., collecting donations for the Muscular Dystrophy Association through April 24 ... ....
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Duchenne Muscular Dystrophy Clinical Pipeline Accelerates: Over 75 Companies Advancing Next-Generation Therapies | DelveInsight

GetNews 18 Mar 2026
DelveInsight’s latest report, “Duchenne Muscular Dystrophy Pipeline Insight 2026,” offers an in-depth evaluation of the evolving therapeutic landscape, highlighting the contributions ...
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Young Scot admits exhaustion comes 'hand in hand' with muscular dystrophy diagnosis

Daily Record 16 Mar 2026
Friends and family of Sophie Hutchison, who was diagnosed with limb girdle muscular dystrophy at 13, will take part in this year's Kiltwalk to raise money for Muscular Dystrophy UK ... .
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Senator Collins Recognized by Parent Project Muscular Dystrophy (Susan M Collins)

Public Technologies 10 Mar 2026
My motivation to take action about Duchenne muscular dystrophy was sparked when I first met Brian and his wife, Alice, and their two wonderful boys-Matthew and Patrick-both with Duchenne muscular dystrophy.".
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O’Sullivan and Costello call for review of Drug Reimbursement Scheme following Duchenne Muscular Dystrophy Treatment Decision (Fianna Fáil)

Public Technologies 10 Mar 2026
... Dystrophy (DMD) ... To us, that signals a system that is not showing the necessary compassion or understanding for people across Ireland living with Duchenne Muscular Dystrophy and other rare diseases.
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Edgewise Announces Positive Long-Term Sevasemten Data Demonstrating Sustained Functional Stabilization in Becker Muscular Dystrophy Through 3.5 Years of Follow-Up

PR Newswire 10 Mar 2026
About Becker muscular dystrophy ... Sevasemten is an investigational orally administered therapy selectively modulating fast skeletal muscle contraction to reduce damage in muscular dystrophies ... dystrophy.
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Brogidirsen (NS-089/NCNP-02) 4.5-Year Clinical Trial Data for the Treatment of Duchenne Muscular Dystrophy Presented at 2026 MDA Clinical & Scientific Conference

PR Newswire 09 Mar 2026
About Duchenne Muscular Dystrophy (DMD)Duchenne is a form of muscular dystrophy that occurs primarily in males.
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Give your opinion on a genetically modified medicine against Duchenne Muscular Dystrophy (FPS Health, Food Chain Safety and Environment of the Kingdom of Belgium)

Public Technologies 09 Mar 2026
Give your opinion on a genetically modified medicine against Duchenne Muscular Dystrophy ... Duchenne muscular dystrophy is a rare genetic disease that mainly affects boys ... Duchenne muscular dystrophy.
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Parent Project Muscular Dystrophy, Foundation to Eradicate Duchenne Announce 2026 Advocacy Leadership Awards Recipients Honoring Bipartisan Champions in Congress

PR Newswire 09 Mar 2026
Enacted in 2001, the MD-CARE Act established a coordinated federal framework to advance muscular dystrophy research, care, and therapeutic development ... About Parent Project Muscular Dystrophy ... SOURCE Parent Project Muscular Dystrophy (PPMD).
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Atamyo Therapeutics Presents Promising Results in the First Patients Treated With Its ATA-200 Gene Therapy in the Clinical Trial Targeting LGMD-R5 Limb-girdle Muscular Dystrophy

Pharmiweb 09 Mar 2026
A spin-off of gene therapy pioneer Genethon, Atamyo leverages unique expertise in AAV-based gene therapy and muscular dystrophies from the Progressive Muscular Dystrophies Laboratory at Genethon.
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AGAMREE® (vamorolone) Data Presented at MDA 2026 Confirm Comparable Long-Term Effectiveness for up to 8 Years of Treatment, with Clinically Meaningful Safety Advantages in Duchenne Muscular Dystrophy (Santhera Pharmaceuticals Holding AG)

Public Technologies 09 Mar 2026
https.//www.santhera.com AGAMREE® (vamorolone) Data Presented at MDA 2026 Confirm Comparable Long-Term Effectiveness for up to 8 Years of Treatment, with Clinically Meaningful Safety Advantages in Duchenne Muscular Dystrophy.
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